gary
Patient
Last on 9 months ago
86 points.
Ace

gary

New Supprot Group SaryePa TowandaPa MansfieldPa WaverlyNy ElmiraNy CorningNy Watkins GlennNY BinghamtonNy 17 months ago

  • Shannon

    wondering when meetings are? im in oneonta,ny...so aloso the closest one too me...thanks

    17 months ago
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Tell us about your experience with/connection to Huntingtons Disease

“I have Hd. I'm doing my best to fight it I have helped found a local support group. I wan't to use support and education to fight HD. ”

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Twin Tiers Huntington’s Disease Support Group will meet on April 23, 2009. The meeting will be held at the Robert Packer Hospital (1 Guthrie Square Sayre, PA 18840) in the Patterson Building, Classroom B from 6-8 PM. This group will continue to meet on Thursdays every other week. Everyone is welcome, those affected with Huntington’s Disease, caregivers, family, friends and any one in the medical field. Coffee and Snacks provided. We are near: Corning Ny , Watkins Glenn Ny , Owego Ny , Elmira Ny , Waverly Ny , Binghamton Ny , Towanda Pa , Mansfield Pa , Wellsboro Pa , Montrose Pa , Troy Pa , Canton Pa , Wyalusing Pa , You don't have to fight Huntington's on your own! Contact us at: twintiershuntingtonsdisease@yahoo.com Jen: (607) 565-2033 or (607) 644-4832 Gary: (570) 596-4203 Thanks, Gary Lane Group Coordinator


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Results 1 - 10

  • Karen

    Hope you start feeling better. Have you been able to go fishing lately?  Do your kids like to fish? My dad is deasced but I did fish with him, when he was alive.   Keep in touch.              Karen

    12 months ago

  • Meghan

    how is your summer

    12 months ago

  • gary

    feeling better!!  have been keeping busy that helps.  I usually take a nap at sometime during the day.  and will be fishing this weekend!!!

    455rocket

    12 months ago

  • Karen

    I like your car!            Are you feeling any better?  I am always tired. I  sleep alot.  Have fun fishing with your children!!!                            Karen

    12 months ago

  • Kelly

    I do have mediation adivce.  Email me and i will write it to you.  We are the same age fighting the same thing:)

    12 months ago

  • gary

    Anyone have some advice?

     I'm starting to feel anxious aroundmy children. I have emotional outbursts. I am thinking of asking the doctor for some more medication but I don't want to feel any more sedated. sometimes i try to lay down and shut my eyes and just meditate for a while but it only helps so much.

    Any advice?

    Gary

    13 months ago

  • gary

    HI Karen,

      My brother has HD as do I.

      One blessing about being disabled I do have time to fish with my 3 kids and wife. We also try to camp whe we get the chance.

    Gary

    13 months ago

  • Karen

    HI Gary,     How is going for you now?  Just day at a time, like the rest of us.   Looks like you like to fish.  That is great to pass  the time. Does your sister have HD?   Please keep in touch..................Hugs,,,  Karen

    13 months ago

  • Shannon

    Thanks, i love my tats, i always wait a year to get what i want, if i still want it then I get it..lol...i got tested at 19 because My mom had be very symptomatic and I had gotten pregnant by accident. I didnt want to pass this along so I got tested, and it came back positive twice. I was for sure I wouldnt have it. But I did and so now i knew that I had to do things the right way if i wanted the HD to end with me....

    13 months ago

  • Kristen

    Hey Gary- I jus read that beautiful letter you wrote you sis, Tiffany- wow- your perspective is so great! It is true that we just don't know what is going to happen next and your story is certainly proof of that- we can plan and plan , but something my just mess it all up without asking first-  I love your attitude!

    Kristen

    14 months ago