Amanda
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Last on 2 months ago

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Amanda

Love takes faith as miracles take believing

4 months ago

Tell us about your experience with/connection to Huntingtons Disease

“My Grandfather died in 1991 due to Huntington's Disease then my Aunt died last year.  My brother announced three weeks ago that he has it and has started to show the symptoms, which means 50/50 chance that I have it and 50/50 chance that his daughter Kyleigh has it.  If...”

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Displaying 1 - 10 out of 13 comments
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  • Rhonda S.

    Hi Amanda!! Just checking in to see how you are!!!

    5 months ago

  • Kristen McQuade

    hey amanda! i realized i never replied to your wonderful comment on my blog...i feel the same way about hoping in my daughter's lifetime...our children are so innocent. i strugle with the "whehn do i tell her?" part- i do not want to put an age on it because i think it is a maturity issue...i do not want to freak her out because she is watching grammy get sicker and i do not want my daughter to associate me with that...i think it would scare her...it is hard because i am trying to get active with all this and right now i just say it's for grammy. anyway- a little slow...but thanks again for the comment :-)

    5 months ago

  • Rob Cleveland

    Just chhecking in...hoping you are well!

    5 months ago

  • jenny

    Great sentiment....very true. Hopefully we'll all see the opportunities when they present themselves. Carpe Diem!!!!

    5 months ago

  • Rhonda S.

    Hi Amanda! Thanks for the request. There are lots of siblings on here. It's so great! You and your family are GORGEOUS!!!

    5 months ago

  • mckenzie portela

    HEY IT IS VERY NICE TO MEET YOU.YOU HAVE A BEAUTIFUL FAMILY

    6 months ago

  • Kristen McQuade

    Hey Amanda! Thanks for the coment about the wedding- it was a beautiful day! My mom who is walking me down the isle has HD and so it was a very special moment!
    I just went to a movie for HDNW and met some people and am excited to be getting involved here. I was pretty active in Cali. but have not been so since my move here 5 years ago.
    I hope you are doing well :-)

    6 months ago

  • Jean E. Miller

    Hi Amanda, what a beautiful family you have! We're all in this fight together to find the CURE-IN-TIME for all of those with HD and especially for all the children at-risk! I watched your brother's video on YouTube; it is beautiful!! Please tell him THANK YOU for helping to create more awareness to HD!!! Love, Jean

    6 months ago

  • Rob Cleveland

    Hi Amanda, thanks for the add! I hope you are well today!

    7 months ago

  • Mike Fecca

    Thanks for the nice compliment regarding my family, you as well have a beautiful family.

    7 months ago
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