hey amanda! i realized i never replied to your wonderful comment on my blog...i feel the same way about hoping in my daughter's lifetime...our children are so innocent. i strugle with the "whehn do i tell her?" part- i do not want to put an age on it because i think it is a maturity issue...i do not want to freak her out because she is watching grammy get sicker and i do not want my daughter to associate me with that...i think it would scare her...it is hard because i am trying to get active with all this and right now i just say it's for grammy. anyway- a little slow...but thanks again for the comment :-)
Hey Amanda! Thanks for the coment about the wedding- it was a beautiful day! My mom who is walking me down the isle has HD and so it was a very special moment!
I just went to a movie for HDNW and met some people and am excited to be getting involved here. I was pretty active in Cali. but have not been so since my move here 5 years ago.
I hope you are doing well :-)
Hi Amanda, what a beautiful family you have! We're all in this fight together to find the CURE-IN-TIME for all of those with HD and especially for all the children at-risk! I watched your brother's video on YouTube; it is beautiful!! Please tell him THANK YOU for helping to create more awareness to HD!!! Love, Jean
Rob
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