Alyson
Family
Last on last week

Wall-to-Wall with Matty Ellison


  • Matty Ellison

    Hiya Alyson :) How are you today? I mentioned before i was planning on doing a cycling event to raise money for HD. Well i got it sorted, im doing it in June and if you could get me any sponsors id relly appreciate it hun. My site is www.firstgiving.com/matthewellison

    Thanks Alyson!!!

    9 months ago

  • Matty Ellison

    lol thank you :) will talk to you soon, tc.

    9 months ago

  • Alyson Brooks

    Yeah...I think that the wait would be the hardest part...well I hope for the best for you!

    9 months ago

  • Matty Ellison

    Yea im going through the testing process at the moment. Of course you can ask lol i amhaving my 3rd appointment on March 3rd and i should be getting tested on my 4th appointment so not long to go now. Just waiting right now :( hate the wait.

    9 months ago

  • Alyson Brooks

    Um...at this point and time I don't want to be tested...I just don't think that I have the mental mindset to do that just yet...My dad, when he found out he had HD, it was a bad experience so it makes me even more nervous to do something like that...ya know? I saw that you are starting the testing process...what are you doing with that right now, if you don't mind me asking...

    9 months ago

  • Matty Ellison

    do you plan to get tested?

    9 months ago

  • Alyson Brooks

    That sounds good! I'm glad that you have support in your area...We have like a local support group here. Just having support helps me through a lot and fundraising ALWAYS helps to get awareness out! I think a cycling event would be an awesome idea!

    9 months ago

  • Matty Ellison

    Hiya yea me n my mum use a loca support group, i also use a few sites online like this one. Would like to go a conference myself sometime. Hopefully im going to go to one this year in the UK. Also want to do some fundraising this summer, some sort of cycling event.

    9 months ago

  • Alyson Brooks

    Hey! Thanks! The Conference was really fun! I went for the first time this summer! I got to know a lot of different people from all over the US that has dealt with HD and it was really neat to meet people who have kind of gone throught the same thing that I have! Are you involved in any groups or stuff like that dealing with HD?

    9 months ago

  • Matty Ellison

    hey :) Nice profile. Made me sad to see so many of your family had or have HD. I see you went to a conference?? how was it? hope your good.

    9 months ago