Anamaria
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Last on 3 months ago
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Anamaria

finally remembered my password : 4 months ago

Tell us about your experience with/connection to Huntingtons Disease

“I am dating the most amazing guy and we have been together for 4 years. His father died 6 years ago from Huntington's Disease. His sister Laura just passed away at the age of 24 from Juvenile Huntington's Disease. Her daughter Kathleen also has JHD and is only 6 years...”

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  • jenny

    Sorry, forgot I'm not really into Facebook. No time!

    3 months ago

  • jenny

    Sorry to hear about Rebecca's friend.....so many tragedies. It's not fair.

    I have seen that our little Princess Karli lost her battle recently. When it is ones so young, there is no way to prepare. You just have to know that you gave her the best life possible, no matter how brief it was. The memories will last a lifetime.
    I have such faith that we will see them all again, and they will be well and healthy. God never intended that we suffer this way.
    I have a favorite scripture, if I haven't already shared it with you, it's from Revelation 21:3, 4. It says, "With that I heard a loud voice from the throne say: “Look! The tent of God is with mankind, and he will reside with them, and they will be his peoples. And God himself will be with them. And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”

    Isn't it nice to see that all the things that cause us grief and pain will one day be no more. I will hold onto that thought and keep litttle Kathleen in my thoughts and prayers.

    Hope you enjoy the warmth of the sun.

    Take care.  jenny.


    3 months ago

  • jenny

    Thanks Ana, how are things with little Kathleen? I think of her often as I do Rebecca.
    My husband is now entering late stage and has to have almost everything done for him now.
    I don't get onto the site much these days..so much to do. But I have a lot of help for which I am most grateful.
    I have some respite care and a lot of services available so I cannot complain.

    Sending my warm greetings from across the ocean. Hopefully Spring is in the air over there. We are experiencing the first nip of autumn weather so winter is on its way for us.

    Take care, (((hugs))) jenny

    3 months ago

  • Karen

    Happy Birthday, Ana!!!

    6 months ago

  • Bruce

    Happy birthday Ana!

    6 months ago

  • Rob

    Happy birthday Ana!

    6 months ago

  • Karen

    HI  Ana,  Thinking of you & family during this time. Have a great  Turkey  Day.   HUgs,  Karen

    8 months ago

  • Rob

    Hope you and yours have a great Thanksgiving!

    8 months ago

  • jenny

    Hi Ana, thanks for dropping by. I think of you all so often. How is little Kathleen doing? And Rebecca? I cannot imagine how hard it must be to lose a child to this monster and then watch your grandbaby succumb as well. It is just too tragic.

    My thought are with you all. Stay strong.
    ((hugs)) to everyone. jenny

    8 months ago

  • Meghan

    how are you

    10 months ago