WeAreHD.org - The Social Support Network for People Living with Huntington's Disease

Robin Marks

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last week

Robin Marks

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last week

Robin Marks

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Miss ya

last week

Christina N

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you should sign up to be a part of the nya. just go to this website: http://www.get-me.to/nya and click on the link for the nya application and even the convention scholarship if you need to, and you'll get to meet a lot of people between the ages of 9 and 29 dealing with the same things.  theres an nya day before the convention for everyone to meet up and they have an entire day filled with stuff just for us. plus you get a free night at the hotel.  so i think you should definitely do it!

last week

Christina N

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When your boyfriend gets tested, just keep reminding him that life doesn't end even if you have the gene.  He still has his entire life to live!  Plus, by the time he'd become symptomatic, there may be a cure or some way to delay the disease anyway.  Making friends who are part of families with HD also makes it a lot easier.  It makes you feel not as alone because you know everyone else is going through the same things and know how you feel.  I really hope you do make it to the convention, and I hope you can get your boyfriend to come, too.  They're so much fun!  Have you been to one before?  Are you part of the NYA?

last week

Christina N

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Thank you so much for everything!  I know I'm definitely still planning to live my life to the fullest.  I wanted to know what's in my future, but I'm not going to let this get in the way of living my life the way I want to.  And I know our generation has the most hope for a cure, so there's really no need to worry at this point! And yeah, I am planning on going to the convention this year.  Are you?

last week

DeLena Mercer

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We got married4/14/07.  Still the best day of my life.  We had so much fun.  We love Key West.  If it wasn't so expensive to live there we would be there instead of Indiana....which I still don't know exactly why we live here.  Except of course our family is here.  I see you are in Michigan right now.  Where at?  My husbands family is in the Grand Rapid area.  Talk to you soon.

last week

DeLena Mercer

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Hi!  I'm pretty good today.  How are you?  So you bought a house how exciting!  Love the costumes!  Have a good nite:)

last week

Heather Dugdale

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Don't be afarid of HD. It is not scary. It is not perniment. It does not scare uo a life. There is hope out there. There is more hope now then ever.

2 weeks ago.

Rob Cleveland

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Totally dig the costumes!

2 weeks ago.