Anamaria
Friend
Last on 4 months ago
109 points.
Guru

Recent Activity

Anamaria

finally remembered my password : 5 months ago

Tell us about your experience with/connection to Huntingtons Disease

“I am dating the most amazing guy and we have been together for 4 years. His father died 6 years ago from Huntington's Disease. His sister Laura just passed away at the age of 24 from Juvenile Huntington's Disease. Her daughter Kathleen also has JHD and is only 6 years...”

Latest Photos

Comment Wall

Sign In to leave a comment.

Results 101 - 105

  • lisa

    hello

    27 months ago

  • jenny

    Hi Anamaria, thanks for the add. I do so feel for the little ones. JHD is so cruel, taking lives before they are lived. Little Kathleen is so young...what age is her mom now? It must be so hard to know you have passed on this dreadful thing to your precious children. But the thing is it's no ones fault, just a case of genetic Russian Roulette. I hope Laura's life is manageable at least. You are doing a wonderful thing in taking care of her. They know they are loved and that is so important. All the best to you from Down Under. Jenny

    27 months ago

  • Robert

    They moved her Nuerology visit up to next wed.. the 11th at 11am

    27 months ago

  • DCB

    Welcome to the site!! My thoughts are w/you

    27 months ago

  • Monica

    Thank you so much for commenting on my blog! And thanks for the add!

    27 months ago