bobbi
Patient
Last on 2 months ago
92 points.
Ace

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bobbi

i hate to see my family go through this 16 months ago

Tell us about your experience with/connection to Huntingtons Disease

“I myself have hd.  my older sister and my father have it. my granmother had it. it is riddled through out my fathers whole family.  I was diagnosed 5 years ago.  I had and still have symptoms of rage memory loss confusion can't muti task depression.  just basically mental problems....”

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  • Rob

    Happy birthday Bobbi!

    5 months ago

  • Mary

    Well, I tried to put a pretty HTML message on here for you but ... TEMPLATES are so touchy!  Anway, it said "I love ya baby"   (((HUGS)))

    11 months ago

  • jenny

    Hey Bobbi, haven't seen you on in ages...how's things? Hope you are keeping your head above water; dog paddle can be very tiring. Jah will provode a life buoy. Hang on....not much longer now. Always thinking of you. (((hugs))) jenny

    12 months ago

  • Heather

    Hey..I am glad you asked. I posted this home article up two days ago.

    http://www.wearehd.org/do/articles/465

    16 months ago

  • Heather

    Hey...I have early onset in my family too. We get really early too. Don't let fear take over your life. You will ive to see youer kids grow up. There is so much progress going on know. Don't let fear ruin your life. Take it back. Enjoy those little kids of yours.

    16 months ago

  • jenny

    I understand how hard things are with this monster in the works! Don't let it get you down....better days are coming! So much is happening on the world scene...all gearing up for the rule of the "eighth king" for his "one hour". It is very scary and exciting all at the same time. Don't miss your meetings no matter how rotten you feel...they are our lifeline. I will always keep you in my prayers. Sending lots of (((hugs))) jenny

    16 months ago

  • jenny

    Hi Bobbi, things ok with you? Haven't heard from you in a while. Miss your emails. Love and (((hugs))) Keep up the good work, jenny

    16 months ago

  • Kristen

    Hi Bobbi! I haven't seen you in while- love the new pics! How are you doing? Is that your daughter? She is beautiful! How is your dad doing? I just put my mom in a nursing home- it is difficult to watch them change so quickily...even though it has been years of progress.  the final stage comes so fast- she broke her hip and since she can heal "normally" she has to use a wheel chair- it's sad.

    Keep your chin up!

    16 months ago

  • Carlie

    Hi Bobby, Dad was the same as yours, it's really hard watching them once they accept the diagnosis, while I had known for a long time he had HD, he was in denial, when he got the official diagnosis last year he really fell apart.  I thought it would be a relief for him as he was feeling so awful and didn't know why and thought it was so many different things.  I guess that's why they call it denial, they know deep down they just don't want to admit it.  I hope things have gotten easier for your Dad and you are keeping well.  Talk soon Carls xo

    16 months ago

  • jenny

    Hi Bobbi, great to hear from you. Did you get my message? I think about you all the time too. I miss you when I din't see you on here. Is you computer working ok now? (((hugs))) jenny

    16 months ago