beth
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Last on 2 months ago

beth's Profile

FDA approval for Tetrabenazine!!!!!

beth carroll, Female, 29, Boise, Idaho, Family

“My mom's side of the family has the gene. I have siblings that are at risk for the HD gene.”

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beth's Comment Wall

Wall-to-Wall Robin Philp at 5:35 pm, August 16 says

Beth, I feel so out of place sometimes at the support meetings, because I have nothing to share. I haven't been around my family members with HD to even begin to understand what everyone is going through. All the stories frighten me. I pray I don't end up with this dreadful disease, but my odds of getting HD are better than winning the lottery. I keep going because I'm trying to learn as much as I can. I wish my husband would show more of an interest, but I don't want to force him. He's either very optimistic or in denial. I've asked him to attend the meeting with me in October. I'm glad you have a great support group in place, and I hope we can become better friends.

Wall-to-Wall Becca Carroll at 8:27 pm, June 15 says

holler

Wall-to-Wall Robert Cleveland at 8:10 pm, May 4 says

Hi Beth, thanks for the add! Hope you are well today!

Wall-to-Wall Donna at 11:56 am, April 28 says

Hi Beth, It is a pleasure. I am very happy to hear about the new technology and how we are getting to a cure. RIght now I am watching my family go down. Looking forward to hearing more positive input. Thanks. Beautiful baby! Dee

Wall-to-Wall Robin Philp at 2:44 pm, April 27 says

Beth, It was a pleasure meeting you at the meeting. It's a good place to talk to people about HD who know about HD. Most of my close friends I've told still don't understand. I hope to see you at future meetings and hope all is going well with your new job. A former co-worker of mine is also starting work at your current employment. She does not know about my situation. Robin

Wall-to-Wall Robin Philp at 5:23 pm, March 17 says

Beth it is in house Beth it is on the corner of 1st and State. The address is 103 W. State and the house is called St. Lukes Womens Life. We meet the 2nd tuesday of every month at 6:30pm. We would love for you to join. The next meeting will be April 8th. There are also people that attend that support someone with HD and there are some that have tested negative but have lost someone to HD or have family memebers that are still at risk.

Wall-to-Wall Robin Philp at 4:27 pm, March 16 says

I live in Boise, Idaho as well. There is a support group that meets the 2nd tuesday of every month. I find it beneficial to be with people face to face that have HD or are at risk like me. I would like for you to come if you can.

Wall-to-Wall Becca Carroll at 6:58 am, December 3 says

i see lijah on there....when is billie gonna get some love? upload some pics!

Wall-to-Wall olivia at 1:43 am, December 1 says

Beth, I love your photo with the cutie patutie. I'm taking a bit of a break from things. I think the two best things any of us can do are a) raise awarenes and b) ask for donations from those who are in a position to help. Have a great weekend. Julie

Wall-to-Wall olivia at 3:11 am, November 28 says

Beth - I had the pleasure of meeting your brother Jeff at last year's HSC conference in Vancouver. He rocks!

Wall-to-Wall Becca Carroll at 2:45 am, November 28 says

hey when did you get on here? :)

Wall-to-Wall jenny at 8:42 pm, November 27 says

It doesn't matter what the test result is when HD is in your family. Either you are worrying about yourself or other family members or both. There is no easy way to travel this road. My husband tested positive at 57 after years of weird symptoms. He is in mid stage now and going downhill. I have two children at risk and four grandchildren. I am always interested in hearing from younger ones so that I can learn from their experience. My children are not tested, even though my son (37) is now thinking about it. I am learning so much from forums such as this. There is no previous family history for us, so we are flying blind. Thanks for joining us. Jenny

Wall-to-Wall jenny at 7:49 pm, November 27 says

Welcome Beth, glad to have you on board. You mention that you have siblings at risk, does that mean that you are not? There are some great people here. We look forward to learning a little more about you. Jenny