Heather's Positive Huntington's Disease Blog
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Created by Heather Dugdale

No More Chorea

No More Chorea

My meds, were up so much, that I got crazy Chorea. People wanted me to get a walker. I kept, telling, them I would get Chorea meds. Gary is on them and he looks healthy. I wanted, them before, I did my speach. I can, have it easier, when I do Relay for Life. Never forget, about Chorea meds. They worked, in my family. They can work for you.
5 months ago
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  • Karen

    What is the chorea drug?      Maby my sis & I good use them?     When do you     your  speech?  on what subject?  HD  Good luck!~! You will do great. Keep posted if you can? Thanks                     Karen

    4 months ago

  • jenny

    Tetrabenazine made my husband very nauseated, depressed and increased his swallowing problems. He said it was like his throat was not closing after he swallowed. He had several choking episodes.
    The trouble is the drug cost almost $340 (thankfully I didn't have to pay the full amount because it is on the govt. subsidised list) but now I have to waste the rest because I am not allowed to give them to anyone else. What a waste of taxpayer's money! I asked why there wasn't a sample to trial with someone like my husband who has bad reactions to everything and the pharmacist told me they had to stop issuing trial packs of drugs because some doctors were dealing them! Good grief! What is the world coming to? 

    last month

  • Heather

    They droped my meds. I got, no knew one.

    last month

  • Heather

    I was always against, Tetrabenazine. It killed a person, with HD. There, were, tear able affects. It make people expressed and make, them kill themselves. It, was, rushed to soon and was uniformed, for the patients.This, my medical opinion.

    last month

  • jenny

    My hubby just tried Tetrabenazine, but is body doesn't like drugs at all.

    He has tried so many but horrible side effects just make it impossible. They make him so ill.

    No choice but surgery to stop the pain....hopefully soon.

    last month

  • Karen

    What is the chorea drug?    You do not answer me back!          Karen

    2 months ago

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