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CHARLENE

Tell us about your experience with/connection to Huntingtons Disease

MY 32 YEAR OLD SON CHRIS HAS HD HE WAS DIAGNOSED AT THE AGE OF 28. HE WAS IN THE MARINES, HIS GAIT IS OFF, HIS SPEECH IS SLURRED, HE SAYS THAT HD IS THE LONELEST DISEASE, HIS FRIENDS AND SOME OF OUR FAMILY HAVE STOPPED GOING TO SEE HIM. I HAVE...

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Displaying 1 - 9 out of 9 comments

  • Rob

    Happy holidays!

    last month

  • Nellie

    Hi Charlene its been awhile I have had a problem getting on this site its not sure why but it not letting me on I keep having to get a new password wierd. Let me know how your son is doing maybe he can add My daugther on this if he is interested they both are close to the same age and it would do him and her good take care hope to hear from you hugs

    5 months ago

  • Rob

    Hi Charlene, thanks for the add! Hope you are well today!

    6 months ago

  • Cheri

    Hi Charlene - thanks for adding me :)

    6 months ago

  • CHARLENE

    THANK-YOU NELLIE OLSEN FOE WRITING TO ME IT IS VERY HARD FOR ME I WANT TO GO TO MY SON'S FRIENDS AND FAMILY AND JUST SHAKE THEM AND TELL THEM THAT CHRIS IS THE SAME PERSON. SO HE WALKS DIFFERANT, AND HIS SPEECH IS SLURRED DEEP DOWN HE'S THE SAME PERSON . BYE FOR NOW. TAKE CARE.

    6 months ago

  • Nellie

    Hi Charlene I was just reading your profile about your son Chris I hope he visits this site and makes friends here I know how he must feel I watch this happen to my husband his friend just stopped coming from the company he worked for it made it hard on him and me as well because you feel more isolated thank goodness I had a few friends and family members to help me but mostly I was on my own that is why I am so glad they have this site it a huge help . Take care

    6 months ago

  • Nellie

    Hi Charlene welcome to this site and thankyou for adding me as friend it sure is good to know that there is this support out there .

    6 months ago

  • CHARLENE

    6 months ago

  • lisa

    HELLO,WELCOME TO THE SITE

    7 months ago