Anne-Marie
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Last on last week

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Anne-Marie

Hello

2 weeks ago.

Tell us about your experience with/connection to Huntingtons Disease

“My brother and I both got it from my father who died in 97.”

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Displaying 1 - 10 out of 20 comments
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  • Meghan O'Donnell

    how are you

    2 weeks ago.

  • emzparks

    funny u mention the notebook. i just got one last week and it is helping me to remember daily task.

    2 weeks ago.

  • Julie Kresse

    Anne-Marie,

    Thanks for the friend request!  I look forward to getting to know you.  I have spent some time in Vancouver, and skiing in Whistler/Blackcomb.  It is very beautiful there.  I'm 54 with a CAG of 42.  I have some mild cognitive and emotional symptoms - no realphysical symptoms yet.  My Father's onset was 29 or 30 - so there can be vastly different times of onset and severity.  I pray that you will be a late onset, as well.  We have two daughters, one tested negative, and one is waiting.  Let me know if you would like to talk about anything.

    2 weeks ago.

  • jenny

    Thank you so much for the friendship request Anne-Marie. You're Nellie's daughter, right? You are the same age as my son who will be 38 this month. He is not tested as yet and has no symptoms at this point in time. When did you test? And can I ask if you would do it again or wait if you had the time over? My daughter is 30 and also untested. It's a big decision, especially when there is no real treatment or cure. I so admire the strength of all the young HD+ people on this site. My hat is off to all of you, (((hugs))) jenny

    2 weeks ago.

  • Karen Lyon

    hi Anne-marie.... Read your profile We are all in the same boat with HD. Just one day at a time. Keep in touch

    2 months ago

  • zena sutton

    Hey thx for the friends request. I hope your well??

    2 months ago

  • lisa porteus

    hello anne marie,how are you doing

    3 months ago

  • Nellie olsen

    Hugs back kiddo

    3 months ago

  • rebekah upperman

    Hi Anne-Marie, Thanks so much for accepting me as a friend. I hope you are doing ok and enjoying the weekend. I am doing fine. This site is amazing...so supportive and uplifting. Take care and let's keep in touch!!!

    3 months ago

  • Nellie olsen

    Hugs from Mom love you

    4 months ago
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