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Gene

Together we can beat this disease 29 months ago

Tell us about your experience with/connection to Huntingtons Disease

At risk.

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Results 1 - 10

  • Rob

    Happy birthday and happy New Year Gene!!!

    8 months ago

  • Meghan

    hell yeah we are

    12 months ago

  • Meghan

    my summer is cool thats awesome that you got a pool

    12 months ago

  • Meghan

    how is your summer

    12 months ago

  • Kristen

    Hi Gene,

    I just went on your blog and read the article A New Attitude about HD.  I found it extremely interesting and fact filled! I also found myself relating to much of what you said about being called out as a gene positive person- I live knowing I have the gene and yet struggle everyday wanting to being more active, yet not wanting people to know.  It's actually quite painful. I try to relate it to cancer- if I was diagnosed with cancer I might be more apt to tell people- everyone knows what cancer is which makes it much easier to talk about- I believe I am on the right track, however, as I just told my 9 year old daughter. I believe by her knowing I can be stronger and more active.  As of yet, I always just related HD to her grammy- who she is watching die.  We volunteer for Pacin Parcin and met him when he came home- all very exciting. But certainly not enough.  Your article gives me strength to do what I need to- there are so many people living in this HD community that we DO need to open up and talk about it!

    Thank you,
    Kristen

    13 months ago

  • Christen

    Sure thing - sorry about that! I will change it right away!!!!

    16 months ago

  • Heather

    Hey Gene. I agree about the holidays with you. It is an awful disease, you ad I know there is hope there.

    16 months ago

  • Missy

    Hello Gene,

    Thanks for the friend invite!!! I'm looking forward to seeing how things go with your pool! I'm SO jealous!!

    Missy

    17 months ago

  • Meghan

    how are you

    20 months ago

  • Heather

    I know we will!

    20 months ago