HD Quality of Life Study in Philadelphia Area
Kessler Foundation Research Center
1199 Pleasant Valley Way
West Orange, NJ 07052
The Kessler Foundation Research Center is looking for individuals (18 and over) who are at risk for Huntington’s disease (HD) and have not been gene tested to participate in a focus group to help us decide what issues are most important to the quality of life of individuals with HD. We are developing a questionnaire to be used by doctors, researchers, and policy makers to learn about how HD affects people’s lives. Participation involves one 2-hour visit, and participants will be compensated $45 for their time. Free snacks and beverages will be served. For more information, contact Heather McGowan by phone: 973-243-6996, or by email: hmcgowan@kesslerfoundation.org.
Study Investigator: Noelle Carlozzi, Ph.D
8 months ago
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