Brittany
Family
Last on 2 weeks ago.

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Brittany

Wondering if/when I should get tested :(

7 months ago

Tell us about your experience with/connection to Huntingtons Disease

“My mom was diagnosed with HD back in 1999, I was in the sixth grade. Once my mother's symptoms got worse, it was hard for me to know how to deal with it.  Growing up without a mother figure is harder than most would imagine. I know I have came...”

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Displaying 1 - 6 out of 6 comments

  • Heather Dugdale

    We have a little Yorkie too. The same situation happened with me and My Mom. I found out in grade 6 that my Mom had it. I lost her when I was 17. It is hard to grow up that way. I had at the age of 13, being the Mother of my two brothers. I have HD. Don't be afraid of getting tested. There is more hope now then there has been in the past 10 years. It is not  a life sentence. If you need hope I run a positive HD website.

    http://heatherdugdale.angelfire.com/

     

    2 weeks ago.

  • Rob Cleveland

    Hi Brittany, thanks for the add! Hope you are well! I have 3 children, the eldest of which is my 13 year-old daughter. So far she knows nothing of hd in our lineage (she just thinks Pop-Pop is old and shaky and I am only mildly symptomatic at his point). I'm struggling with the ifs and whens of telling her. In your opinion, is sooner rather than later the best approach?

    7 months ago

  • Nick Grays

    hey, thanks for the add, sorry about your mother, my situation is a lot like yours, i don't know if i should get tested or not

    7 months ago

  • Heather Alimossy

    hey thanks. it is very hard to grow up without a mother especially when your mothers still alive but is to sick to be able to be there for you. keep in there. it took me awhile to decide whether i wanted to get tested and i chose to and i don't regret the decision at all. knowing that i have it helps me make decisions about my life.

    7 months ago

  • Ashlee Duffy

    Hey, thanks for the invite. How u doing? x

    7 months ago

  • lisa porteus

    hello x

    8 months ago