Jean E.
Family
Last on last month
117 points.
Guru

Jean E.

I wish I knew 14 months ago

Tell us about your experience with/connection to Huntingtons Disease

“I've been involved with HD since 1983 when my only child, Kelly, was first diagnosed through an MRI as suspecting to have juvenile Huntington's chorea.  We did not know it ran in her paternal side of the family [neither did they].  Kelly later tested positive for HD after the gene was discovered...”

Latest Photos

Comment Wall

Sign In to leave a comment.

Results 21 - 30

  • carissa

    hey gorgeous hw have u been doin.. i got anotha tattoo its for my real dad u shud look at it its on my pictures.. but anywys how have u been doin lately hopelly good guess ill ttul...
    Carissa :)
    i love you

    23 months ago

  • MARGARET & DOMINIC

    I AM ALSO BEEN A MEMBER OF THE VIC - AHDA IN ASDWOOD FOR MANY MANY YEARS I JUST FEEL LIKE I HAVE HAD A KICK IN THE TEETH ALL ROUND

    24 months ago

  • MARGARET & DOMINIC

    i have already contact vic AHDA IN ASHWOOD NO HELP AT ALL

    24 months ago

  • Crista

    Hey Jean! I had a question for you. I was just wondering what all a scholarahip fund to AZ includes? Beucase I live in MI and next year its in AZ so I would need to fly there and have money for hotel and i was also wondering when I could apply and how many people I could apply with beucase I think i need four. If you could please help me out that would be much appeciated!!!


    thanks Crista

    24 months ago

  • Tera

    Jean,
    Thank you sooo much that is exactly the information I was looking for. I would have never found it surfing the net there is so much stuff it gets frustrating. I appreciate all your help!!!!
    Tera

    24 months ago

  • Meghan

    hey jean me my brother and my daughter and my mom all got blood taken for a study they are doing they want to no why the counts high from her mom usally its high from the dad

    24 months ago

  • Meghan

    did you get hit by fay

    24 months ago

  • Karen

    I just read your profile & bio, on Kelly. We have something very similar........ as my daughter is Kelly!! You are doing a great job in memory of you daughter. Talk to you soon.

    24 months ago

  • Karen

    I just read your profile & bio, on Kelly. We have something very similar........ as my daughter is Kelly!! You are doing a great job in memory of you daughter. Talk to you soon.

    24 months ago

  • Meghan

    hey jean how have you been?

    25 months ago