Researcher
Last on 4 months ago
59 points.
Ace

kesslerresearch

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Tell us about your experience with/connection to Huntingtons Disease

Currently, the Kessler Foundation Research Center is working on a project to develop a more sensitive quality of life measure to be used in Huntington's disease. In short, the current quality of life measures are generic, and subject the patient to many questions that don't apply to their case, wasting time and...

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  • elz / lynne

    elz: now THIS looks worthwhile!  i hope to see more about this soon.  lynne and i are fortunate to share a religion -- unitarian universalism -- which emphasizes building (god's kingdom/ better community/ better lives) here on earth, for both oneself and others, and we have found that focusing on daily quaality of life really helps both of us.



     

    7 months ago

  • Bruce

    Welcome

    8 months ago