WeAreHD.org - The Social Support Network for People Living with Huntington's Disease

http://www.digitaljournal.com/blog/3460 Good Read!!!...

In the fall of 2006, in her second year at Rivier College in Nashua, a girl looked at Meghan Sullivan and said, "Meg, it's only 10 in the morning. I can't believe you're already drunk!" She wasn't. An inevitable genetic curse was showing itself. A few months later, on Valentine's Day 2007, as Sullivan poured herself a glass of lemonade, her body again betrayed her. The glass fell. So did her heart. She looked at her mother, Cheryl. "Mom, I know I have Huntington's." A month later, a neurologist agreed. Nearly three years later, Meghan, 22, sits on a couch in her Chelmsford home....

Thanks for the link to this Susan!!!June 10th 2006, HDSA National Convention in Milwaukee, Wisconsin. Good afternoon, my name is Phil Hardt. I am the HDSA 2001 Person of the Year and have been the current Chief Volunteer Officer for the Arizona Affiliate and Director of their Annual HD and JHD Retreat for the last 6 years. I had the privilege of testifying about HD in front of the NIH’s committee on Genetic Discrimination in 2004. Two months ago I had the bitter-sweet experience of traveling to Colombia, South America, to the city of Juan de Acosta to help impoverished families struggling with HD. In case...

http://www.biocompare.com/News/NewsStory/304575/NewsStory.html...

http://www.pittsburghlive.com/x/pittsburghtrib/news/westmoreland/print_659312.html ...

http://www.guardian.co.uk/lifeandstyle/2009/aug/11/huntingtons-disease-charles-sabine/print...

HDSA Powerpoint from the talk entitled, "Walking on Eggshells in HD:  The Perfect Storm, from the 11/7/09 HDSA Education Day in Massachusetts   http://www.neuropsychology-services.com/Huntingtons.html...

I always thought that I would write a book at some point in my life.  I thought one day, I would retire to my cottage in Nantucket, sit on the porch in a wicker chair overlooking the ocean, and write for days at a time about my life. The book of course would start slow, growing up in a small town north of Boston- but then I would soon start the chapters that included fame, fortune, and romance. The reality is that I am sitting here, at my kitchen island, my two year old just went down for his nap- it’s about 90 degrees outside and my legs...