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Last on 3 weeks ago.

Marilyn

Tell us about your experience with/connection to Huntingtons Disease

My sister passed away from HD.  Myself and other siblings do not have it but I do have a niece that has not been tested.

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Displaying 1 - 10 out of 11 comments
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  • Heather

    Merry Chrstmas!

    3 weeks ago.

  • Meghan

    your welcome

    2 months ago

  • Marilyn

    Thank You.  There is a lot of work to be done!  But the end result is going to be great!!! 

    2 months ago

  • Tim

    All the best with your planned walk and concert!

    2 months ago

  • Heather

    You came to the right place.

    2 months ago

  • Meghan

    hey pleasure having you here

    2 months ago

  • Heather

    Hey I was wondering if you could give more  info abut that benefit.

    2 months ago

  • Marilyn

    Yes I will be there.  Have already signed up.  Only live about 15 minutes from the place.  I am hoping I can get quite a bit of support from this event.  Thanks the heads up on it.  Hope you can make it.  It would be great to meet you.

    2 months ago

  • Katie

    http://www.huntington-study-group.org/

    There's an HD meeting coming up in St. Pete's Beach.  November 15th.

    I went last year, and plan to fly down this year.  It's about the current research, and there's also some great speakers.  I believe the Florida chapter is planning to put together a small meeting after HSG. 

    2 months ago

  • lisa

    hi marilyn,am lisa nice to have you here welcome to the siteSmile

    2 months ago
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