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Robin

Laura.....My Hero

last month

Tell us about your experience with/connection to Huntingtons Disease

My niece Laura and my great niece Kathleen both have Juvenile Huntington's DiseaseMy brother in law past away a few yrs ago of Hunington's Disease

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Displaying 1 - 10 out of 12 comments
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  • Holly

    hey naynay.. i miss you tons.. come back =[

    last week

  • jenny

    Thanks for posting all the wonderful tags...you must be a scrapbooker are you? The photos are awesome! I am so grateful that Rebecca has such a loving and supportive family of true supporters. Love is the glue that holds us all together. (((hugs))) to you and yours, thank you for your kind words, take care, jenny

    last month

  • Heather

    Hey...I had to raise my brothers to when my Mom went into the hosptial.

    2 months ago

  • Tabatha

    2 months ago

  • Robin

    Ok i'm back from visiting Laura and her family for a month.....I had the pleasure of being able to go an help releave some of the everyday stress from my family....I stayed by Laura's side until she was sick of me lol. Ive only been back for a few days an already feel like ive been away from them for months, I miss them all dearly. They all play an important role in the care of Laura and Kathleen...I am so blessed to have such a loving an giving family....The family and friends support is so amazing.....I'll be uploading many pics so keep an eye out for them....take care...

    2 months ago

  • Anamaria

    I love you too.. Miss you...

    4 months ago

  • jenny

    Hey Robin, Glad you have made it back! The site experienced some upgrading a while ago and a few people lost stuff...maybe that's what happened to you. Hope all is well for you all at the moment. I can't imagine what it must be like to have so much tragedy in a family! I'm glad you all have each other and an army of supporters...that makes all the difference. Hope to hear from you more now, how's Rebecca coping? I think about Laura and little Kathleen a lot. Nothing fair in this world is there? Keep your chin up, Mother Hen, (((hugs))) jenny

    4 months ago

  • Robin

    I really suck at thi stuff for emotional purposes....after i made this account i came back home an tried to log an lost all my information but as u can see i got it back now....lol

    4 months ago

  • Rebecca

    No more R sisters But wewe have a R brother his name is ROBERT!!!!!!!!!!!

    6 months ago

  • Rebecca

    6 months ago
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