Any good books?
Hi
A UK family co write a book called Living with Huntington's Disease .
The main author is called Sandy who gene positive for HD . The book also includes chapters written by her husband, children and their partners . All the contributions are well written and both funny and of course hearbreaking . You can find details about the book on the following link www.phildourado.com/content/huntingtons.htm
Hope this is useful Regards Jaq
10 months ago
Thank you. It looks like a good book. I will see if I can get it on amazon.
10 months ago
Alice Wexler wrote Mapping Fate
Let's see if I can put a link here correctly http://books.google.com/books?id=gq_zgZi_NQkC&dq=mapping+fate&pg=PP1&ots=Kp9CkT7qOk&sig=vpH2GbI7bedSOGjAXg-xW8kB4-M&hl=en&prev=http://www.google.com/search?hl=en&q=mapping+fate&btnG=Google+Search&sa=X&oi=print&ct=title&cad=one-book-with-thumbnail#PPP1,M1
10 months ago
I googled it, and that's the first link, with a preview.
10 months ago
Thank you Katie. It looks like a very good book too.
10 months ago
There are more books. Novels infact. By Richard Karlsen. Devil's Dance and Devil's Dance Redux, and lastly Wolfe's Choice. The Author had a close family friend whose mother had the disease and was at risk for it. I have read Devil's Dance. It was very good, but very sad. But, having a vested interest, I am biased.
I am in the process of reading the Woman Who Walked Into The Sea by Alice Wexler at the mo. Tis very much a history of the disease. And does take some reading. But it is panning out to be very interesting. Well worth the read.
Am always on the prawl for more books so will keep you updated if I find any thing else out there. Sadly there doesn't seem to be much.
Lastly, just incase you didn't know, but in House MD, on TV they are running a story line for one of the DRs who finds out she is positive for the gene. Her name is 13 and it comes up during series 4.
Good Luck.
2 weeks ago.
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