It was really great to meet you! I enjoyed talking about our mutual experiences with HD.
I know it took me a while to get to you on here. I've been very busy with work. And on top of that I have been prepping to give a speech at the HDF conference in Boston Aug 8. I'm excited, but also very nervous as well and very unsure about what exactly to say.
I don't know if you got my text or not, but my email is j******@gmail.com.
Thank you for the add.Hope You,Stone and Vivian are well.Hope your mother is doing well too.I am planning another Fundraiser in August with the help of the Wishlist Foundation.I will also be attending a walk for HD in Sept. in Orlando Florida with Karen and Meghan.I will be sending a check for $2,052.00 to you shortly for the money we rasied at the Fundrasier in Tampa in June.Sorry it has taken so long just been so busy with life.Thanks again.
Clinton
I (finally) watched the teaser for the documentary. Looks great! I found it through a link on the N.CA. Chapter Newsletter. Is there a link on the HDSA webpage? Maybe this site?
I've heard that there's a script written for the "movie of my life that doesn't actually reflect my life", but does have to do with HD. The producers are circulating it, and I just wait.
We'll have all this awareness, we won't know what to do with it!
Danalyn
Clinton
Meghan
Rob
Meghan
jimd
lisa
Clinton
Katie
rebekah