Peter
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Peter

The greatest gift God gave us was hope...

7 months ago

Tell us about your experience with/connection to Huntingtons Disease

“I have two cases of HD in my life. My friend Rob married Laura. She has HD. She was pregnant before she knew she had it. We all prayed that her daughter wouldn't end up with it as well. They're divorced now(and no, it had nothing to do with the...”

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Displaying 1 - 10 out of 18 comments
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  • Rob

    Hey Peter!  Hope all is well and that you have a great holiday season!

    last month

  • Robin

    Hi pete......
    Remember me? the hillbilly Rob was raggin on lol
    just wanted to say hi an thx for being there for Rob....was kina nice to see ya again...take care of yaself
    hugz
    Robin-Lauras aunt in mississippi

    4 months ago

  • lisa

    hi peter its lisa ,i hope you are doing ok ,how are you

    5 months ago

  • rebekah

    Hi Peter, Thanks so much for accepting me as a friend!! I hope you are doing ok!! This site is so wonderful...it's nice to be able to relate and find so much understanding in others. WE are all in this together and will stick together until we can celebrate that CURE!! You sound like an absolutely awesome friend and they are lucky to have you!! Take care!!

    5 months ago

  • Anamaria

    i just wanted to comment on your blog it wouldnt let me post there either.. but all i have to say is wow.. i am crying at this very moment.. that was very touching and so sincere .. this is all so much to take in.. and your right we all need to stick together and realize that everyone one of us are going through pain.. yes some more than others cuz like you i dont have kids but i cannot even begin to imagine the agony and thoughts that must go through robs and beckys heads.. and ive never really met you but you seem to be a great friend to rob.. and thats what he needs. this is the heardest thing that we all will probably go through and it will change us forever but the way i think about it is that , that is why kathleen and laura are here. god has a plan for them too.. they will touch so many in however long they will be here with us.. and we all just have to realize that and appreciate every moment we have with them.. and i know its so hard sometimes.. every-time kathleen comes over we all just want to hold on to her and never let her go.. just thinking that if she stays tight in our arms no harm can come to her.. and the same with laura.. when i sit and talk to her or watch a movie its so hard to just look over and know that deep inside something is tearing through her body and there's nothing that anyone can do for her.. i pray everyday for strength for everyone,, for a cure to be found and make it all just go away.. i dont know .. but thanks again for those kind words.. im sure i will see you at the stonehenge.

    ana

    6 months ago

  • Julia

    Peter these people are in your hearts they are your family. stay strong for you as well as them but know when you need that shoulder.

    6 months ago

  • jenny

    I will do my best Pete. I hate to see people lost and angry, especially at God....it puts blinkers on them. We have to let the anger go and just sit quietly and listen, then we need to ask questions and keep asking till we get the answers that satisfy our sense of justice. That's what is screaming at us...nothing seems fair. When you know the truth though, it all fits into the big picture and you understand why. Keep the faith Pete. I hope the blogs help you to understand too. All the best, Jenny

    6 months ago

  • jenny

    Pete, I have just read your blog and would have left a comment there, but it wouldn't let me, so I just wanted to thank you for sharing your feelings here and for being so honest. You are so right. We all need to express our pain in non destructive ways. Self destruction benefits no one, least of all the person engaging in it. The coming in three's thing is spooky sometimes isn't it? There is a reason for all that we go through in this life, but it's not what most people imagine. God doesn't want our angels...he has his own. His original plan was that we keep our angels with us and never have to part with them. But something went wrong to mess that up. I wonder if you would like to read some of my blogs? I have posted many Bible topics in the hope of explaining why these things happen to us and where a God of love fits into the pain and suffering we endure on a daily basis through something that happens to ourselves or others we love. I would welcome your opinion. Please feel free to tell me what you think. All the best, with you in the struggle. Jenny

    6 months ago

  • Rob

    Hi Pete, thanks for the add! Hope you are well today!

    6 months ago

  • Rob

    Hi Pete, thanks for the add! Hope you are well today!

    6 months ago
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