Samuel
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Last on 4 months ago

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Samuel

...NEGATIVE

7 months ago

Tell us about your experience with/connection to Huntingtons Disease

“When I was a small child, I learned that my mother had Huntington's Disease. Many of my other family members have had it, do have it, and have died from it as well. I've known the horror of it, and live with the pain it causes every day. Just recently...”

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Displaying 1 - 10 out of 14 comments
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  • jenny

    Hey Samuel, just thought I'd drop by and say g'day. How are things going in your life now that you have had time to process your HD negative status? Have things settled down for you now? I was thinking about you this morning and wondering how you were goin. All the best from Down Under, jenny

    3 weeks ago.

  • Shelly

    2 months ago

  • Jen

    Just dropped by to say hello :D

    2 months ago

  • Melinda

    I feel and share your pain. HD is slowly taking away my family. I lost my father at 50 yrs old and just recently my oldest sister at 38 yrs old. I'm currently watching my 34 yr old and 30 yr old sisters deteriorating from HD. Plus I am gene positive and still presymptomatic but I'm sure HD is already killing my brain. I have a younger sister who should have her results in the next couple of weeks. I have a daughter and 8 nieces and nephews that all are at risk. HD sucks and must be stopped! Even though it is extremely painful I find positiveness by being involved in the fight for a cure by participating in all the research studies that I can and writing my congressmen about supporting bills that will help the HD community and raising money for our walk in St. Louis and hearts for HD. I feel peace bcuz I know I am contributing. Do you know about the National Youth Alliance (NYA)? Where do you live? I truly want to be your friend bcuz we have so much in common.

    3 months ago

  • DQL

    There's so much pain and fear in your Bio Samuel. I really feel for you. I hope you will really grab the life lines that all these wonderful people on here throw you. Believe it or not, so much of what you fear or grieve can be shared and then lightened. Grab the lines! You are too young to be hopeless.

    3 months ago

  • rebekah

    Hi Samuel, Thanks so much for accepting me as a friend. This site is amazing and filled with the most wonderful and supportive people. It helps so much!! I hope you are doing ok..Keep in touch..someday we'll all celebrate the cure to HD together!!!

    4 months ago

  • Stephen

    Nice tunes mate! What programs do you use?? I've just starting messing around with ableton live actually...really good actually..

    5 months ago

  • Stephen

    Just read your profile...I love breakbeat/ambient as well! I'm getting more and more into the electronic side of music - do you have any stuff we can hear? We could introduce it for all the hear!!! Hope to hear from you soon matey!

    5 months ago

  • Rob

    Hi Samuel, thanks for the add! Hope you are well today!

    7 months ago

  • Jahnnie

    Happy Birthday Samuel! I hope all is well

    10 months ago
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