WeAreHD.org - The Social Support Network for People Living with Huntington's Disease

Wall-to-Wall Kelly at 1:35 pm, October 9 says

Thanks for the Add Misty! Where are you trying to get into nursing school at? I'm currently in nursing school!

Wall-to-Wall Robert Cleveland at 9:34 pm, September 29 says

A Halloween party? That will be cool! What are you going be? I kinda wanna be Hellboy. Do you think I can get my hair to do one of those Samurai top knots?

Wall-to-Wall Robert Cleveland at 3:46 pm, September 25 says

Hey there! Things are going ok. It's been a real busy time at work lately and so I have been in scarce supply here on the wearehd board. Our local HD chapter fund-raiser a few weeks ago went really well. How are you and yours?

Wall-to-Wall Melinda Wagner at 1:58 am, August 29 says

The rep is Todd Adkin. My family is mostly fine now. We miss her just like we miss our dad. It only fuels our fire to fight HD though. Anyway, I really looked at your daughter pics and they're beautiful. One day I'll add some more pics on my profile.

Wall-to-Wall Laura Cleveland at 3:12 pm, August 28 says

The Pacin' Parson is so nice. We walked for a 2 mile stretch that began at the meeting point (a shopping plaza parking lot) and ended at his sister's house. The best part is that most of the 2 miles were on a bike path, so we had a lot of quiet, calm conversation without having to inhale exhaust fumes and yell over the sounds of engines. It turns out that he grew up in the same small suburb that we live in. Of course, there were more farms and less subdivisions back then.

Wall-to-Wall Melinda Wagner at 3:17 pm, August 26 says

Just wanted to let you know I contacted my MO rep about H.R. 6259 and he is a supporter!! It took a long time to hear back but at least it was good news.

Wall-to-Wall Meghan O'Donnell at 3:53 am, August 4 says

i am doing good so is my daughter

Wall-to-Wall Alice Hinkle at 3:22 am, August 4 says

Hey you! Pretty good summer. I spent most of it with my kids (15 & 11) hanging out and playing taxi. Not too much HD stuff after seeing my sister in N.Cal directly after convention. Heavy few weeks. Now it's starting to roll fast again. Golf tourney tomorrow. Walk next week. NFC call this week. Yikes! Here we go again!! How about you? Your little girl's swimming pictures are precious!

Wall-to-Wall Jason Mundy at 3:47 am, August 3 says

Great!!! Hey, how did you get the Youtube video on your profile?

Wall-to-Wall Meghan O'Donnell at 3:45 am, August 3 says

hey misty how have you been?

Wall-to-Wall rebekah upperman at 7:09 pm, July 26 says

Hi Misty!! Just dropping in to say "Hi". I hope you are doing well and enjoying the summertime. Take care!!!

Wall-to-Wall Laura Cleveland at 7:50 pm, July 25 says

Sorry Misty. I couldn't go to work with Rob this morning and consequently he was unsupervised on the computer again...

Wall-to-Wall Robert Cleveland at 7:36 pm, July 25 says

Love the new profile pic...virtual reality goggles are a good look for you. Did you get a free toaster with those?

Wall-to-Wall Laura Cleveland at 6:18 pm, July 25 says

I KNEW I liked you!

Wall-to-Wall Laura Cleveland at 4:21 am, July 25 says

Misty, your babies are beautiful... and yes, I did see the halo.

Wall-to-Wall Robert Cleveland at 8:23 pm, July 15 says

I won't be in the race, but I do want to be present. It seems like great fun. I'll have to see if the boss (Laura) thinks it will fit into our schedule. Time will tell. :)

Wall-to-Wall Tabitha Wagner at 3:41 pm, July 12 says

my address is the same as Mel.....1126 Haven View Cir. O'Fallon MO 63366....how are you doing???? havent talked to ya much.....

Wall-to-Wall Robert Cleveland at 12:17 pm, July 11 says

The pen is mightier than the sword. (Actually, I've never experienced the blade of the sword but I did once sit down the wrong way on a Bic ballpoint and can tell you firsthand that smarts like nobodies business!)

Wall-to-Wall Matty Ellison at 12:44 am, July 9 says

Thank you very much hun, had an ok day. My nan had a fall and fractured her hip :( god damn bad news keeps coming and coming lol

Wall-to-Wall Robert Cleveland at 11:58 pm, July 8 says

Yes but I may have bitten off more than i can chew.

Wall-to-Wall Nellie olsen at 9:32 pm, July 7 says

Hi Misty thanks for adding me to your friends list it is so nice to know that there are so many wonderful people to out there can give us the support we need take care have a good day hugs

Wall-to-Wall Robert Cleveland at 7:41 pm, July 7 says

How can I be full of beans when life is just a bowl of cherries?

Wall-to-Wall rebekah upperman at 6:03 pm, July 7 says

Misty, I'm happy to be your friend!! Please keep in touch!! This site is so wonderful..some of the nicest people in the whole world are on here!!! Such a support system!! Take care!!

Wall-to-Wall Clinton Sell at 3:55 pm, July 7 says

Thanks for the add.I am currently work on another Fundraiser for HD.

Wall-to-Wall Laura Cleveland at 3:29 pm, July 7 says

I like that we're seeing eye to eye. I'll not be one to rattle your cage (nor will I rest on my laurels). See ya later alligator.

Wall-to-Wall Laura Cleveland at 1:43 pm, July 7 says

Hi Misty. I'm doing well, as is my home (where I hang my hat). I do have to tell you however, that this game will be easy as pie for Rob. He'll throw in everything but the kitchen sink and might just win the whole enchilada, this is just the tip of the iceberg for him. But I don't know... he is a legend in his own mind and you just might be someone for which hope springs eternal. Leave no stone unturned... let the games begin.

Wall-to-Wall Robert Cleveland at 12:00 pm, July 7 says

LOL...That's a piece of cake!!!

Wall-to-Wall Robert Cleveland at 6:34 pm, July 6 says

You're flying by the seat of your pants.

Wall-to-Wall Robert Cleveland at 1:43 pm, July 6 says

Cliche installment #2 - Que sera, sera...

Wall-to-Wall Meghan O'Donnell at 1:44 am, July 6 says

my daughter will be 4 july 23rd her name is alyson

Wall-to-Wall Meghan O'Donnell at 1:26 am, July 6 says

hey misty how old is your daughter?

Wall-to-Wall Meghan O'Donnell at 12:54 am, July 6 says

went and saw fireworks at a golf course were my brother works

Wall-to-Wall Meghan O'Donnell at 10:06 pm, July 5 says

hey misty what did you do for the 4th of july?

Wall-to-Wall Robert Cleveland at 5:00 pm, July 4 says

All I have is a $20 trillion dollar bill...can you make change?

Wall-to-Wall Meghan O'Donnell at 3:17 am, July 4 says

hey misty great video

Wall-to-Wall Meghan O'Donnell at 2:58 am, July 4 says

hey misty i had a great time with you at the convention

Wall-to-Wall Melinda Wagner at 8:30 pm, July 3 says

Thanks, the video was really cool - great job!! I'm not flooded but there is definitely flooding all around here. Have a wonderful Fourth of July!!

Wall-to-Wall Melinda Wagner at 3:10 pm, July 3 says

What's happenin Misty!?! I posted a pic of you and your prize dancing at the Gala Dinner. I was amazed with the conference and counting down the days until the next one. I can't view your video that Kaitlin mentioned, can you please email it to me? Outstanding work - as usual!! I hope I can have the same results in St. Louis. Sure glad you're my new best friend to help me:)

Wall-to-Wall Ashley Shaw at 12:31 pm, June 30 says

I guess I'll stop by and say hello to you! Love you sis ~A

Wall-to-Wall Stephen Doogan at 8:40 pm, June 27 says

Just wanted to stop by and say well done with all of your efforts into an HD cure - you're obviously a great advocate!!

Wall-to-Wall Robert Cleveland at 2:17 pm, June 26 says

Of course...Ziggy Stardust...should have known!

Wall-to-Wall Robert Cleveland at 11:40 pm, June 25 says

Love the new profile pic. What is that, intermission at the local Kabuki theater?

Wall-to-Wall Jacey Mukka at 11:59 pm, June 24 says

Hi

Wall-to-Wall Matty Ellison at 10:25 pm, June 24 says

Hey Misty, I like your message :D Thanks very much hun I'm leaving this thursday so less than 2 days to go now! I can't wait to get started really. Just wanna pedal my averaged sized feet off.

Wall-to-Wall Ashley Shaw at 9:43 pm, June 24 says

We are a strong family. I am greatful you are my sister! Love you

Wall-to-Wall Meghan Sullivan at 9:16 pm, June 24 says

Hi!!! I had a blast at the convention!!! It was really nice meeting you. My birthday is on Friday. I am going to be 21 yay.

Wall-to-Wall Jacey Mukka at 3:19 am, June 15 says

It was awsome seeing you at convention =)

Wall-to-Wall Adrienne at 4:58 pm, June 14 says

I just got your postcard!!! That is the cutest thing ever! Thank You!! That was a really good idea to send those out! I need your number...I got a new phone and lost all of my numbers.

Wall-to-Wall Robert Cleveland at 6:59 pm, June 12 says

It was great to meet you too! You dance divinely!!! ha ha!! Anyways, I'm already psyched about next year in Phoenix!

Wall-to-Wall Adrienne at 3:35 pm, June 12 says

I just read the comment below...What did you say to the HDSA board of trustees?

Wall-to-Wall Adrienne at 3:33 pm, June 12 says

Hey. I know! I wish I would have gone. I am part of the NYA but I didn't apply for the scholorship. But I am def going next year especially bc it's in Az. How was it? So those pictures we took before the marathon are gone. Ali threw out the freaking camera bc she didn't want to carry it any longer! I am kind of bummed!

Wall-to-Wall Jean E. Miller at 1:58 pm, June 12 says

Hi Misty, it's good to see you on here too....but I'd never recognize you from your profile pic! Love, Jean

Wall-to-Wall Steve Ireland at 2:04 am, June 12 says

Misty - you are a firecracker. I love the way you sat up on the first row and without hesitation presented your issue to the HDSA Board of Trustees. I applaud you.

Wall-to-Wall kaitlin klarer at 1:28 am, June 12 says

holy crap, misty i love your video, i totally cried

Wall-to-Wall Robert Cleveland at 12:46 pm, May 13 says

I am well...also muy ocupado!

Wall-to-Wall Robert Cleveland at 1:36 am, May 13 says

Hi Misty...hope you are well!

Wall-to-Wall Adrienne at 3:56 am, April 28 says

Hey! It's going really well. I am pretty pumped for the marathon now that it is only 4 weeks away!! Time goes by so freaking fast. How are things with you?

Wall-to-Wall Robert Cleveland at 3:01 am, April 19 says

I'm ok all things considered. :) Love San Diego. I had a fraternity brother who was stationed there (Navy) after we graduated. I visited a few times. Awesome!

Wall-to-Wall Jacey Mukka at 3:51 pm, April 18 says

That's awsome.. Congrats!

Wall-to-Wall Robert Cleveland at 11:51 am, April 18 says

Hi Misty, thaks for the add! Hope you aer well today!

Wall-to-Wall Jacey Mukka at 5:11 am, April 11 says

I hope u get to go too =) Tell me as soon as u find out

Wall-to-Wall Ally at 1:31 pm, March 27 says

Misty, please send me your email address and let me know what fundraising you are doing with runs. I have contacted some people involved with HD research at the University of Virginia and we are trying to start a Running for Huntington's campaign. I missed it for my last marathon but I intend to do it again!

Wall-to-Wall olivia at 6:03 pm, March 23 says

You get what you settle for, so don't settle! What awesome advice. Too bad so many of us learn it too late in life.

Wall-to-Wall Kristi Bowler at 6:33 pm, March 9 says

thats a good motto to live by as well :]

Wall-to-Wall lisa porteus at 9:51 am, February 27 says

thanks mistyxx

Wall-to-Wall Jacey Mukka at 6:04 pm, February 26 says

Haha i know, you try to join in on a chat and ur trapt there

Wall-to-Wall lisa porteus at 4:07 pm, February 26 says

hello mistyx

Wall-to-Wall Matty Ellison at 2:38 am, February 20 says

Hiya Misty how ya doing?? Im going to be doing a cycling event in the UK in June to help raise money and awareness for HD. If you know anyone who would like to sponsor me that would be cool :) I was looking at yours and Adrienne's sites on firstgiving earlier. You girls are doing well with your donations, i promise to donate to both of ya this week sometime....when i have some money :P anyway my site on there is www.firstgiving.com/matthewellison tc hun.

Wall-to-Wall Jacey Mukka at 11:49 pm, January 23 says

That's good... it's awsome how u can participate in things like that! Idk if we're goin' yet... depends on if we get a scholorship or not i guess... r u

Wall-to-Wall Jacey Mukka at 5:50 pm, January 20 says

Idk things have been worse... wut about u

Wall-to-Wall Adrienne at 9:35 pm, January 14 says

Hi Misty! Glad to see you on here. I am sorry to hear about your mom.