Dealing with your condition positively
12 Members

My Postive HD page and blog

I am 25, am experiencing Huntington’s disease symptoms.  I am in home care. My family is one of the few in the world who have early onset. I was a Nurse Assistant  before I got sick. I made a positive, comprehensive website. It has a blog, Articles,  care giving tips, research,  ways to fight brain fog, myths, my story, my families’ story, history, ways to have a positive testing experience, and ways to cope. I also put on there the poems I got published in the horizon. I now have my personal support group.  I am on the Top Disability/ Disease Blog List. I also have won the Disability Network Award. 

                                                    

http://heatherdugdale.angelfire.com/

2 months ago

I have looked at your site, it has some good information on there, so thanks for keeping people informed....Smile

2 months ago

We need information that works for us by somone who is us. I have used all of that myself. I could do it negtive like everything else.

2 months ago

Just checked out your website Heather...well done! What a wonderful effort. Cool

2 months ago

 It is proff that all people with HD are capable to make or do anything they want to.

2 months ago
Heather,I have visted your site of and on for a while now. I have a niece 19 who is at risk. I love my niece but she is in some serious denial.I am farther advanced than my brother so I see more of the symptoms.My niece accepts me being sick but not her father.Anyway i've tried to give her you site so she can speak with someone closer to her age.Hope you don't mind.2 months ago

Denial is a safe place to be for her. She can't face up to see her Dad dying. She soes need to open hereyes and look. He is sick and it HD is there. Send her to my site and I can show her how to accpet it.

2 months ago

It seems denial is a safe place for a lot of people. My husban's family cannot face the fact that their brother may not be the only one in the family to have HD and pass it along. Will just have to hang on and wait to see who else presents in the future. We all hate the skeletons in the closet! 

2 months ago

 Whenever someone wants help I blog about it. The only thing my Dad never told us was the fact that Mom could die. Mom was his high school sweetheart. He did not want to aknoledge that. Accept HD. We have it. We see it. The only way to accept is to see. Accept that you or your loved ones are getting sicker. Accept it. HD is an illness that affects the whole family. Open your eyes and see what is going on. That is the only way to be at peace. Peace and harmony is your life. Being in denial won’t help a person get there. Don’t hide. You can’t be happy living in fear. You can’t be happy being scared. You don’t have to be afraid any more. Accept HD. Everyday I accept the fact that I am getting sicker. I am going to get sicker. We are all getting sicker. We just don’t have to die anymore. Not with the solid research that is here. By me accepting HD. I have moved on and live my life. It feels good to get out of denial. Get right out.

2 months ago

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