michael's Journal
-
August 09, 2008
we are doing good
charlie and i are doing good hes got a black eye from a fall but he is doing well meds are stable and he seems to be more comrortable we have a nurse that visits once a week ------thanx ------to all and who helped us throuh this and who help us now -
July 22, 2008
what happend at rush hospital
well charlie and i went to see the doctor he dose not do well with doctors he gets scared and nervus he woke up saying this morning 21 july 2008 he was scared to go he last was there 15 years ago when he was diagnosed i thought it had been ten there records had shown 15 years hes benn dealing with this HD wow long time i love him so much he was asked by the doctor who i was his reply was my best friend i shed a tear as do i for all who deals with this my heart goes out to all there are so very few who know about this whole HD thing . i am so very glad i can write in my journal to people who know what im saying thanks to all any way today was a blessing it did not go as planned however things got bad as soon as we got to the doctors office he freaked out screaming and yelling would not stay sitted down the doc got scared and she called security they restrained charlie and took him to the hospital where he will see all the hd specialist while he is in there for atleast the next two weeks they will observe him and get him comfortable they said he was shurly on the wrong meds and doses as well none of the previes doctors knew anything about hd im so happy that he is in the best care there ever in his dealing with this HD they have come along way in 15 years he will be in the best of care im sad to have him gone for he is im sure not a happy man at this moment but will return to my care a new and very happy person all i can hope is to make his last years on earth a comfortable and happy life i pledge my life to his care till hes gone im young and have the rest of my life to live i live here and now for my best friend he is 52 im 39 and would give my life to god for his my passion to care for him is great and would like to tell al who deals with this im not a religus person but GOD BLESS US ALL . thanks to all who listen to me and tell me how to keep my self as well as charlie to keep or heads up and our life brite LOVE , MICHAEL AND CHARLIE
-
July 19, 2008
I hope things will get better soon
charlie and i are going to rush hospital im sure you all have heard of this place chicago we are going to see a top HD doctor shannon and her crew they will help us get this under control better . I think he is begining to give up and let this get the best of him i try so hard to keep his spirit up but he says he feels like he is losing the battel. he feels like he is losing his mind he is so uncomfortable right now is so frustrating to him and i both
thanks to all for your caring support love michael and charlie -
July 09, 2008
WHAT CAN I DO
I NEED SOME HELP IN TRYING TO CALM CHARLES . I DONT WANT TO DRUG HIM UP .THE DOCTOR PERSCIBED HIM HALDOPERIDOL.IT MAKES HIM DRUGGIE I DONT LIKE IT NIETHER DOES HE .PLEASE HELP ME HE IS OUT OF CONTROL WITH HIS SCREAMING.