Susan
Patient
Last on 4 months ago
1333 points.
Samurai

Susan

Education is KEY: http:www.facebook.comgroup.php?gid247920126366refmfgroup.php?gid247920126366refmf 7 months ago
Tagged

Tell us about your experience with/connection to Huntingtons Disease

“I went for a physical with a new Primary Care Physician.   I filled out the information relative to family history and my Doctor didn't know what Huntington's was...so she decided to draw blood and find out if I had it too.  I was unaware that I was supposed to be genetically...”

Latest Photos

Comment Wall

Sign In to leave a comment.

Results 1 - 10

  • Karen

    Susan,  Thank you for all you do for HD.  It is fantastic the work you do!!  I know you enjoy it immensley.  It gives you a purpose driven life.    I had a bit of pneumonia ,so I am feeling much better.    My husband will take me to get a mo.  Thanks again.....Stay young & beautiful as yo are.            Love,  Karen

    5 months ago

  • Jean E.

    Hi Susan - do you have a link where we can purchase your books On a High Wire, Without a Net!: Living with Huntington's Disease, Sheltered from the Storm: Preparing for the HD Onset and “HD Champions! ~ supporting the cause” ??  I've only found one available on Amazon and I'd like to get all 3 at once! 



    Thank you for all you do creating awareness!!



    Love



    Jean

    6 months ago

  • Rob

    Thanks for the bday wishes.  :)

    6 months ago

  • Karen

    Susan,  I had to go out of town this weekend , we had a grandchild  in the hospital . He is doing ok, now.  I will get that MO in the mail tomorrow. I am so sorrry , you can't run a business without the money.  I was able to give our daughter the HD books, she is so grateful, too.  Thank you, Again.  Hope all is well with  your family.   I am always praying for you all.                            Karen--xo
    i

    7 months ago

  • Karen

    Susan ,   I  am  sorry  I am late in getting the MO to you.  I have been sick with headaches, so my husband plans to take me tomorrow.  Thank you for waiting. Hope you & family are well.  Still praying for all of us.              Karen--xo

    7 months ago

  • Meghan

    Hi Susan!!! How are you feeling? I am doing pretty good. How is your family doing? My family is doing great. I am happy because I got to see my one year old niece yesterday. I am having trouble walking. I miss you.

    Love always,
    Meg

    7 months ago

  • Karen

    HI Susan,   I have received the books.  Thanks,  I will send a MO.   Thank you for everything!!!  Please keep in touch.                    Karen xo

    7 months ago

  • Vincent

    Thanks so much susan for all the information I  will be ordering the books! you sound like such an inspiration. This site needs people like you! thanks again.



    -Vince

    7 months ago

  • Vincent

    Hello susan, i thought i take the time to introduce myself to you...im Vince. Iv heard your write books? could you give me a little insight on what there about?

    7 months ago

  • Karen

    Thanks, Susan.   That is great, let me know what I owe you?  Yes, you are right I am not finished, yet.  With HD it takes longer to read.  But I have the rest of my life, which I think will last longer than I think.   Your photos are so beautiful, such a good looking  & photogenic bunch!!     Stay well & keep in touch.  Thanks............xo       Karen

    7 months ago