The Journey We Can Travel Together!
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I got tested TODAY

I get the results in 7-14 days. I used to not want to be tested, but I changed my mind in the last couple years. I felt like I was worrying about HD so much and spending so much negative energy on HD already that I might as well get tested. I hope it's negative, then I can go on with my life, but if it's positive, I want to make a difference in this world, and I'm ready to take on that challenge. It's so surreal. I can hardly believe it. I'm anxious, worried, and tired of not knowing. I'm ready for relief of just having the answer! I'm praying that the test will be negative, and know that with God all things are possible. I just wanted to let everyone know! Any advice is much appreciated:) Love you all! Melinda13 months ago
thanks for sharing - we're all hanging in there for you!13 months ago
wow, good for you, for getting tested! I pray the news is good news..HD has to stop!! God bless!13 months ago
Good or not please remember we will all be here for you!!!13 months ago
we are with you the whole way . i'll keep you in my prayers13 months ago
Good Luck sweetheart! I pray that you will recive the answers and results you are looking for. The only advice I have to offer is to be open and honest about your test and results with those around you. I have not told my husband yet what my test results were... he dosen't even know i was tested. I am having a much harder time trying to find a way to tell him, than it was getting the test in the first place.13 months ago
Thank you all for your thoughts and prayers! I'm so grateful for this wonderful support group. I do plan on being open with everyone with my results. I have a great family, and my fiance is very supportive. He's told me that he'll be there for me no matter what. Angela, your husband must know that hd runs in your family right? I'm sure that he loves you and would be supportive if you told him.13 months ago
hey Melinda, I made my appointment to get tested. I have the test on December 21 and I'm so scared. Im here for you.13 months ago
melinda you are so brave. i'm too scared to get tested.13 months ago
GOOD LUCK MELINDA!!! You will feel much relief with either result.13 months ago
Let us know what the results are, we are here for you either way! I got tested, I needed to know. They came out positive but I look at it in a good way, I was givin it for a reason. I would probably never have met any of you if I didn't have it. I was givin it to make a difference. No matter what the result, look at it in a positive manner13 months ago
Hey Melinda, I am thinking of you! Take Care! :)13 months ago

Pat
How do you start a topic?13 months ago
I totally agree with you lynn, like everything happens for a reason, and we don't always have to know the reason why things happen the way they do. Some things only God knows. I definately want to deal with it positively no matter which result I get. Who knows what will happen when it really comes down to it, but that is how I really feel. I just want to make a difference. Good for you Erin for making the decision to get tested! It's a big step. Good luck!13 months ago
Hi Melinda! My prayers are with you! You are very brave and strong. No matter what the result you made a important step that a lot of people will never do. My life changed when I found out my results, I walked out of that office with such a different understanding of how people live thier lives. Do what you can when you are ready to do it. just getting tested is making a huge differnece. Good Luck!!!!!!13 months ago
Thanks! I know this is an important step and I know that once I hear the results my life will be changed forever. What kinds of things did you look at differently when you got your results? Thank you so much for the response. I love hearing from all of you guys!13 months ago
Melinda, I am so proud of you for making the decision to get tested. That is such a big step and one that I cannot take at this time. Ifeel that I spend a lot of negative energy as wellwondering if I have it. I am so up in the air about getting tested. If I got tested and it was negative then I could go on with my life and just focus all my attention on my Mom who is struggling with HD. Good luck and I pray that everything works out the way God has planned for you.13 months ago
Thanks for sharing your thoughts...we're all here to listen!! Our prayers and thoughts are with you..13 months ago
The hardest part of the testing procedure is what you're going through right now. Waiting for the results; you'll probably bounce from anxious to petrified to calm several times each day. Keep us posted on how you're doing, okay?13 months ago
Good luck with yout test. I hope that the time flys by!13 months ago
I've been trying to stay occupied, and it really hasn't been that bad so far cause I've been busy...kinda like an ordinary day, but I'm anxious to hear the results. I wish the neurologist would just call me so i can get this over with.13 months ago
goodluck melinda...its a hard process...and its such a relief when its over, even though there is a huge adjustment phase! I recieved my result last month and it was a really challengin time...to say the least!....but the knowing is a relief, well it was for me anyhow...i did test negative but it was still really hard...harder than what i probably anticipated... I wrote a story on hdac if you would like to read it... i guess this is just one experience...and there are many!! http://www.hdac.org/features/article.php?p_articleNumber=528&PHPSESSID=534b01a45ef43d917996d468a99b41f2 goodluck...i really hope its good news...either way you sound like your a fighter and will make a big difference in the world...awesome!13 months ago
Good luck Melinda. I am too scared to get tested. My mom just lost her 11 year battle with HD in June. My brother just got tested this past year after getting married and was HD negative. I will be thinking of you in hopes that your results are negative.13 months ago
Congrats Michelle for your results! Although I did read your article on HDAC and I'm sorry you had such a hard time coping with a negative result. I guess I never thought getting a negative result would be so hard, so thank you for sharing your story with us. Appreciate it!13 months ago

DCB
I tested about 5 years ago, this is a very tough time for you I know--The future holds alot for you whether either way the test comes back-there are so many positive steps that research is taking--My thoughts are w/you and I pray for a Neg result for you, but please know there are friends here who are willing to help you all the way through the process.13 months ago
I got tested ten yrs ago and it still feels like yesterday dont be surprised by strange and unexpected emotions once you have the results(positive or negative) please let us know so we can be there for you whatever the result. In the meantime fill your days with stuff that can take your mind off it try clearing the attic!!!13 months ago

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