Meghan
Patient
Last on 2 weeks ago.

Recent Activity

Meghan

We need to find a cure.

last month

Tell us about your experience with/connection to Huntingtons Disease

“I was diagnosed with HD in March of 2007 when I was 19. I am 21. I have been symptomatic for about a year or two. I have a sister who is 27. She is gene positive. My Dad had HD. He passed away in September of 2008. Rest in peace Dad. 9-15-08. I...”

Latest Photos

Meghan hasn't posted any photos yet.

Comment Wall

Sign In or Sign Up to leave this user a comment!

Displaying 1 - 10 out of 57 comments
1 2 3 Next

  • Crista

    PS what  an adorable baby! Im assuming thats your sisters! shes beautiful!

    3 days ago

  • Crista

    Hey girl! How was your Thanksgiving?

    missssss you TONS!! xoxox

    3 days ago

  • Laura

    AWW CRAP!! IT TOTALLY CUT OFF YOUR HEAD!!!!!

    Anyway...

    Thursday, November 20th Meghan became an AUNTIE!!. Her sister gave birth to Baby Teagan Sharen Freimuth was born at 8:07 AM. She was 7 pounds and 11ounces. She was 19 inches long. She has a head full of dark wavy hair.

    Happy Thanksgiving Meghan!!!!!!!!!!!!

    last week

  • Laura

    hope its ok to break the news but......

    Photobucket last week

  • donna

    hi megan.  just stopping by to say hi!!  i hope you are doing good and to let you know i'm thinking and praying for you and your family!!  Stay strong!!

    2 weeks ago.

  • sue

    Meghan,

    my name is sue and i am a filmmaker here in boston. i am so sorry for the loss of your dad.

    if you are interested in sharing your story. i would like to talk to you. I am producing a video  about HD to give others, including scientists who are working on a cure/treatment,  a greater understanding of what day-to-day life is like.  i can tell you more via email or a call.

    please feel free to contact me at f******@gmail.com
     i hope to hear from you.

    thanks.

    2 weeks ago.

  • Crista

    Hey girl! just thinking about you! Hope you doing ok!

     

     

    misssssss n love you!

    3 weeks ago.

  • Maria & David

    Hi Meghan,

    Thanks for the friends invite. I'm so sorry for your loss. This is a very sad time for you, I know. Losing a parent leaves big hole in your heart forever. That is a very nice picture of you and your dad. How's it going for you? How are you? My hubby has HD. The first one to be diagnosed in his family. It's been a very tough road for us becuase we don't have family support. No one really understands what really goes on in the daily life of someone with HD and their loved ones except those that are right there living it or have lived it before. Let's keep in touch, okay? :)

    3 weeks ago.

  • Laura

    Ohhh the baby is coming soon! You must be so excited!! Sorry I just read your comment, I had surgery (just my tubes tied, no more babies...which is OK!) .

    I want to get her something for the baby.  I have to think. is she having it in CT (she lives in CT right?) I will think up something crafty. My dad is going to a nursing home in Lowell temp. until he can get into a better more HD facility- so I can come see him and you one night. A double whammy. If I bring mom she can pay. HAAA HAA. I will let you know, mom was talking about you the other day, she said something like your mom told her you said it's ok if Debbie comes, she is like another mom. (Or something like that) Anyway my mom was soooo happy about that. It made her day. Just thought you would want to know that. Your loved!!

    I will ask mom when she is going next week and then let you know.

     

    :) Laura

    last month

  • Carmen

    Thank you for the "friend request".  Welcome.  I have lost both of my parents.  My mother was 46 when she passed in 1970.  My father passed 20 years later.  Neither of them were diagnosed with HD.  They each had been diagnosed, especially my mother with various diseases.  One she most definitely suffered from for years was cancer; from in her late 20's.  She married at 27 and had 9 children; even as the cancer attacked her boy.  My aunt, however, on my mother's side was diagnosed in her 50's.  My uncle then researched our family tree on that side of the family and found that my great-grandfather on mom's side had all the symptoms, although never diagnosed.  Eveyone on my mother's side of the family that we have been able to trace, has passed away at a fairly young age; no older than 65 apparently.  Except for my aunt who was comatose for the last 10 years of her life.  She passed at 70.  She was never on life-support and my uncle took care of her at home with a nurse stopping in a couple times a week until he had a stroke.  He didn't stop caring for her, however.  A nurse then came to the house every day for a few years.  She passed in her sleep.  I found it interesting that, in her casket, she looked as if she hadn't aged past 50.  Her body hadn't reacted to the struggles we all face in life.

    Your father passed on my birthday.  He is at peace and is watching over you...

    last month
1 2 3 Next