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Last on 22 hours ago

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Havanna

i got new pics!!!

22 hours ago

Tell us about your experience with/connection to Huntingtons Disease

My real birthday is 2/20/1999 - so I'm really only 9.  I was born on my grandpa's birthday 2 years before he died with HD.  My oldest aunt Becky just turned 38 and she's been sick for as long as I can remember. My aunt becky died this july. I have 4 aunts...

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Displaying 1 - 9 out of 9 comments

  • Heather

    Hey..Sweetheart. I was your age when my Mom got diagoinsed with HD. I know what it is like being young and having to deal with HD. I was 13. In grade 5, my Mom went to the hosptial. Don't worry. I have it, I am here to tell you they are going to be okay. Give your family strength to fight.

    2 months ago

  • Havanna

    hahahah i love ya guys!!!

     

    2 months ago

  • alta

    Hi vanna,

    I didn't know you were on here tooo.

    I added you for a friend, if I did it right.  love you...grandma

    2 months ago

  • Tabitha

    whats cracka lackin girlfriend!!!!! hope your doin dandy!!! if not you know im just down the stairs to the left through the brown door and somewhere in my room!! love you to pieces!!!! im always and forever here!!!! peace to you my beauitful neice that is frickin awesome!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    4 months ago

  • Melinda

    Thanks for being the best daughter a mother could ever have!! You are my motivation to fight HD with everything I've got!! I'm so glad you're apart of the NYA - now we are fighting together.

    6 months ago

  • Jean E.

    Hi Havanna!! I met two of your fun aunts at the convention in Pittsburgh! I hope they've told you all about the National Youth Alliance already and that you will consider joining it too! If you look under the Community pages for the NYA you can learn more, or just ask me. I'm one of the adult advisors to the NYA. There are a lot of other young people your age you can connect with! [[[HUGS}}}} 'n Love, Jean

    6 months ago

  • Meghan

    welcome to the site hopefully you don't have it

    6 months ago

  • lisa

    hi hunni am lisa nice to meet you

    6 months ago

  • jenny

    Welcome sweetheart, it's lovely to have you here. (((hugs))) from jenny in Australia

    6 months ago