Patient
Last on 4 months ago

Wall-to-Wall with Jean E. Miller


  • Jean E.

    Hi Valerie - Do you attend the HD support group in JAX? I'm from the west coast in Florida. I think it's fantastic you're writing a book about your experience having HD! My daughter, Kelly, really wanted to do that too to help people understand how her mind processed things and how having HD affected her. But she never did. I had a good friend with HD for years who was excellent at expressing how someone with HD thinking process worked. Her name was Lou Wilkinson and she was from Calgary, Canada and she was writing a book too. Sadly she died suddenly, not from HD but from doctor's not finding an infection she had. I put a lot of Lou's writings on a website, maybe you'd like to read them: http://huntingtondisease.tripod.com/louisewilkinson/. Keep us posted on your book! Love, Jean

    7 months ago