Washington State Residents
10 Members

Welcome

Hello everyone, and welcome to Washington State Residents! My friend, Amy, made a group for her state, so I thought I'd do the same for all of us up here in washington. To start off, my name is Melinda. I'm 24. Been around HD for a great deal of time. My mom has it, and my brother and I are at-risk. Can't wait to see how many others are out there in the area! Melinda14 months ago
Thanks for starting this - I recommend you list the resources and information in your state for the Washington Community!14 months ago
Hi! I live in Bremerton which is about a 1 hour ferry ride from Seattle. The University of Washington was declared a HDSA Center of Excellence a couple of years ago. I have been there to see (an exam) Dr. Bird who is one of the more knowledgable neurologists in the area. I have found nothing in the way of local support groups for myself.14 months ago
Hey! Nice to meet you. Nice to meet someone from the area:) I'm from everett. I think I've heard of Dr. Bird. I haven't been to the UW but I've heard it's the place to go to get tested. I didn't get tested there though. Look under the blog I posted and see if it shows a support group in your area. I just found out that there is one in snohomish. If they have one in a little town like that, they must have many more in seattle.14 months ago
Thanks Melinda, but there was nothing close to me. I am really greatful for the internet. On-line friends are my support group :-)14 months ago
my spelling sux doesn't it! I meant to say grateful14 months ago
I know the people online have been my support so far too. It's been so great just talking to people who know what you're going through. I haven't actually been to that support group yet, but probably will go sometime. That's too bad that theres none in your area. Anyways, we're alll here for you online:)14 months ago
Thanks Melinda! I cannot express how happy I am that I was introduced to wearehd.org. and especially the Washington State Residents! I pride myself in not dwelling on the what if's as Tye has not been tested and does not want to be but there are days when I want to talk about it and he doesn't. Totally understandable. Our conversations are deep and somedays it's nice to have others to talk to and learn from. I appreciate what you have done! Thank you!14 months ago
You're welcome! Me too! I love this website. It definately helps to talk about it. This is a great place to learn and talk to people. Glad you joined the group! Hope to talk to you more soon.14 months ago

Does anybody know of nursing homes/assisted living places with huntington's experience in the Seattle area that don't cost a million dollars a month? My husband gets about $2000/mo in disability and we can not afford to spend much more than that for a place for him. It's just too unsafe for him to be at home any longer, though. He's still walking, talking a little if you're patient, can feed/toilet himself, but has no other self-care ablilities any more and has lost most of his "social skills" and "common sense" type behaviors, if that makes any sense.

i just really need to find him someplace where he can be safe and cared for/about where there are things for him to do with his time other than sit on the couch and sleep all day or stand in the front doorway and stare out at the street.

10 months ago

 Try calling the Life Care Center of Skagit Valley, it's not Seattle, a bit north, but they have quite a bit of experience with HD.  Not sure on the cost or availability but maybe they can give you some more information.  Good Luck.

5 months ago

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